編者按
聯(lián)合國人權(quán)理事會第58屆會議于2025年2月24日至4月4日在日內(nèi)瓦萬國宮盛大舉行。
北京市光明慈善基金會，作為聯(lián)合國經(jīng)社理事會特別咨商地位的非政府組織，積極參會并提交了書面和視頻發(fā)言。發(fā)言涵蓋了多個重要主題，包括“女性賦權(quán)：促進(jìn)全球人權(quán)事業(yè)的繁榮發(fā)展”、“傾聽孤獨(dú)癥家庭的聲音：提升全球?qū)陋?dú)癥的關(guān)注與認(rèn)知”以及“父母無條件的愛：通過星星工程療愈孤獨(dú)癥兒童”、“志愿服務(wù)活動推動文化權(quán)發(fā)展”。為了與讀者共享這些精彩內(nèi)容，我們將分期逐篇登載，敬請期待。
傾聽孤獨(dú)癥家庭的心聲 提升全球孤獨(dú)癥關(guān)注意識
薛葵陽
北京市光明慈善基金會副會長、國際部總干事
發(fā)言內(nèi)容
孤獨(dú)癥，這一特殊的神經(jīng)發(fā)育障礙，正影響著全球約1%的人口。北京市光明慈善基金會正在啟動的“星星工程”孤獨(dú)癥家庭百家心理訪談計劃旨在讓孤獨(dú)癥家庭發(fā)聲，講出他們的心聲與挑戰(zhàn)。孤獨(dú)癥家庭在康復(fù)、教育、就業(yè)等方面面臨諸多困境，社會支持體系尚不完善，專業(yè)人才匱乏，歧視與偏見依然存在。我們希望通過訪談，喚起更多人對孤獨(dú)癥群體的關(guān)注與關(guān)愛，消除偏見，為他們創(chuàng)造一個更加包容和諧的社會環(huán)境。我們相信，每一份關(guān)注都是一份力量。我們期待與全球伙伴攜手，共同推動孤獨(dú)癥事業(yè)的發(fā)展，為孤獨(dú)癥家庭提供更多的幫助與支持。
Listen to the Voices of Families with Autism and Raise Global Awareness of Autism
Xue Kuiyang
Vice President
Beijing Guangming Charity Foundation
Speech
Autism, a special neurodevelopmental disorder, is affecting approximately 1% of the global population. The "Star Project" psychological interview program for 100 families with autism, launched by the Beijing Guangming Charity Foundation, aims to provide a voice for families with autism to express their opinions and challenges.
Autistic families face many difficulties in rehabilitation, education, employment, and other aspects. The social support system is not yet perfect, there is a shortage of professional talents, and discrimination and prejudice still exist. We hope to raise more people's attention and care for the autism community through interviews, eliminate prejudice, and create a more inclusive and harmonious social environment for them.
We believe that every attention is a force. We look forward to working together with global partners to promote the development of autism and provide more help and support for families with autism.
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